Monday, June 20, 2011

Mystery Diagnosis

So, Cohen is still a little mystery boy. The majority of his viral testing has come back negative so they no longer think it is a virus. They sent pictures of his back to Children's Hospital to their dermatologists to see if they had any suggestions. This is just such a rare thing in babies, especially in the NICU. The dermatologist was there while I was visiting tonight and they are checking for a few more things. They had to do another scraping of his bumps, poor little guy. But, he seems to be tolerating it all fairly well. He's a trooper that's for sure! He is still doing well otherwise. Please pray for wisdom for the doctors that they will be able to figure out what it is. Pray for strength for our little buddy that he will keep doing well and pray that whatever it is isn't in his lungs, spinal fluid, or blood.
He got a second picc line today because he is getting a number of medications that have to be run by themselves, so they all need a different line. Rather than give him a new IV every day they chose to give him another picc line. The little guy was pretty worn out today, he slept most of the day. I forgot to mention yesterday that he opened one of his eyes!! The other one still seems to be fused shut, but he definitely had the one eye open.
Here are a few more pictures from the other day when I got to hold him. I haven't taken many new ones lately because he has had so much going on. These are pictures that the nurse took. They are kind of blurry because she tried to turn the flash off so it wouldn't be in his face. He is wearing Gramma's wedding ring in the first picture.


  1. Oh Jana! You, Cohan, and Grandma are pretty adorable. I'm so glad you are able to hold him! I am sure it makes you both feel better.
    <3 Bridget

  2. Jana, you have such a beautiful little man there. I am so glad that the rash seems to be nothing serious. I was wondering if it is "simply" because he spends so much time on his back?
    I am glad they gave him a new pic line. As many meds that he needs, the pic line is the best way to go. WOW, he opened one eye. That is HUGE news. Thank you for sharing it with us.
    Always remember, I am praying for your family. Agape, Bonnie VanFossen

  3. Wow! The photo with the ring really gives a perspective of just how tiny he really is, yet God is in love with him and holding him in the palm of his hand, and you all as well.
    I was just looking on-line the other day to see about the time little babies eyes can open. So happy to hear that he is trying to see the world now! Praying and hoping for the best!

  4. I know for a fact what holding your little guy meant to you. I am a mom of a preemie child who was born while two and a half months early. Be strong, keep the faith, hold on to all the hope you can, even if its just a glimmer, and know that God is watching over you. Treasure those pictures of you holding him and hold on to the day where you can hold him again and when hes a little bigger. My prayers and thoughts are with the Kimmel Family, always.

  5. Great new photos. I'll bet he is very happy too every time you get to snuggle him. His little hat is so adorable!

  6. precious photos Jana. praying for knowledge and strength. Thank you for writing and keeping us updated. So glad you have your Mom and Family. Thinking of you often. Deanna