It's been a few days since I've done a Cohen update. There isn't too many new things going on because they are moving verrrrry slowly with all of his changes. I went in on Friday and he was getting his echo done and was just sound asleep through the whole thing. His echo showed that he still has a moderate PDA, the size hasn't changed at all. The right side of Cohen's heart is mild to moderately enlarged. At his last echo it was only mild, but the Drs said it may be slightly bigger or it may just be a matter of who is reading the ultrasound. Because of his lung disease, his heart has to work harder to pump blood to his lungs and that's what makes the right side of his heart enlarge. The worry is that if it gets too big it will just poop out and he could go into heart failure. We have been told that he isn't to that point yet, but that it is something they will continue to watch closely, and they would like to see the heart decreasing in size instead of possibly increasing.
Right now Cohen is on 2L of high flow oxygen at about 30-40%. He is getting his blood gases every Monday and Thursday and then they decide if he can get weaned. They are weaning him down really slowly because of his heart. They don't want him to go down on his oxygen too quickly and then get in trouble and have to go back up.
So that's where we are at. We obviously want what is best for Cohen, but it's also frustrating to just not be able to take him home. Cohen is 15 weeks old today. He is 7 lbs 3 oz and growing.
ah, what a sweet little kiss!
ReplyDeleteAw it does get a bit frustrating towards the end when they are so close and that last little bit of progress seems to be so slow. It's hard to wait, even when you know that it is for the best and that you wouldn't want to take any risks by pushing him too much. But when it's been months and the due date has come and gone . . . I know that's when it got harder for me. Hang on in there.
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