I've been thinking lately about what I want this blog to be. We started it as a journal for ourselves, never really thinking that anyone other than our families would be reading it. Even if everyone else moves on and stops reading, I want this to continue to be a place for our story for our family. But, it also has become a place for others to read about the life of having a preemie and also about life after losing a child.
We often hear from others that they feel like they know us or are invested in our story because they have been reading our blog. I have to say that if you would have asked me a year or two ago if I would have been putting my life, my joy and devastation, out there for the world to read, I would have laughed. I've never been a very good at sharing my feelings, I've been more of a deal with it myself and move on kind of girl. But, in light of recent events, there is no way that I could go through this without sharing my life and receiving the help of others. I have met so many amazing people, some who have journeys similar to ours. Some who know what we are going through, and others who don't know but are a continued support and encouragement to us.
On occasion, I get nervous about posting things because I don't know what other people will think of me. I worry about people being offended or not understanding. But, this is my journey, and no two people's journeys are the same. I want to continue to be honest about our trials and celebrations. I know that people prefer to hear the happy over the sad, but I have to be true to our journey. I hope that this blog can continue to help you better understand what it's like to have a preemie and also the heartache of losing a child and the hope and miracles that can be found out of both.
If you, or someone you know, has lost a child or has a child in the NICU and wants someone to talk to, or you want to know how you can help them, please feel free to email me. I don't have all the answers, but I know how helpful for me it has been to have someone who knows what it's like.