Tuesday, March 27, 2012

The Blog

I've been thinking lately about what I want this blog to be. We started it as a journal for ourselves, never really thinking that anyone other than our families would be reading it. Even if everyone else moves on and stops reading, I want this to continue to be a place for our story for our family. But, it also has become a place for others to read about the life of having a preemie and also about life after losing a child.

We often hear from others that they feel like they know us or are invested in our story because they have been reading our blog. I have to say that if you would have asked me a year or two ago if I would have been putting my life, my joy and devastation, out there for the world to read, I would have laughed. I've never been a very good at sharing my feelings, I've been more of a deal with it myself and move on kind of girl. But, in light of recent events, there is no way that I could go through this without sharing my life and receiving the help of others.  I have met so many amazing people, some who have journeys similar to ours. Some who know what we are going through, and others who don't know but are a continued support and encouragement to us.

On occasion, I get nervous about posting things because I don't know what other people will think of me. I worry about people being offended or not understanding. But, this is my journey, and no two people's journeys are the same. I want to continue to be honest about our trials and celebrations. I know that people prefer to hear the happy over the sad, but I have to be true to our journey. I hope that this blog can continue to help you better understand what it's like to have a preemie and also the heartache of losing a child and the hope and miracles that can be found out of both.

If you, or someone you know, has lost a child or has a child in the NICU and wants someone to talk to, or you want to know how you can help them, please feel free to email me. I don't have all the answers, but I know how helpful for me it has been to have someone who knows what it's like.


  1. Amen sister! Well said. I appreciate you!

  2. So encouraging!!! God is using this blog in my own life now as I brave the unknown and fear the rocky and hard places. I to will feel what you felt in the hospital unable to do anything. I am so thankful for your story. For you and Mo's story. That no matter how strong we are with the Lord- this stuff does happen and it doesn't mean that we haven't been "walking the walk" with him... just that he wants to use us to further his kingdom and get to know him in such a different way. I know that its not easy and we ask why- why us? It will all make since someday. May we all be a light in this dark world. I now get to be a part of lives I never thought I would - mom's of CDH kids. To celebrate the victories and the loses. Thank you for sharing- and don't stop!!!
    Rhonda Holtrop

  3. Thank you for responding to my post on the Parents of Premies facebook page. We are going on a journey that is so similar to yours, only about a month earlier. It is encouraging to me to read how well Cohen is doing and to see that another mom has some of the same struggles that I do. Thank you for sharing your story.