Thursday, June 30, 2011
Videos
I am finally posting two of the videos I took last week. It's kind of long but you can see his little eyes open :) The other one is of him chewing on his tube, one of his favorite activities. I made it successfully through rounds again today. Cohen has mostly been having quiet days, but he isn't making much progress on his ventilator settings. He is going to get steroids next week to see if it helps his lungs out at all. Since he is still getting rid of his rash they don't want to give the steroids to him yet because they can hide the symptoms of infection, so they want to wait until his rash is hopefully gone to give them. If the steroids don't work then they will start thinking more about fixing his pda, which they also won't do until his rash is gone because the rash is right where they would make an incision. For now the plan is to let him kind of hang out until they try the steroids next week. Please pray that he doesn't continue to have to go up on his ventilator settings and that his rash heals quickly. He has been on his meds for the rash for almost 2 weeks now and it looks so much better. Since Cohen has been stable we have been getting to hold him every day for a few hours which we love.
Wednesday, June 29, 2011
Date Night
Cohen has had a few pretty slow days, which we are so thankful for! They are still just playing with his ventilator settings a little but he is just kind of hanging out for the most part. His feedings have increased to 4.3 mL per hour which he has been enjoying! He is down to one IV which is so weird to see him without something on every limb and a ton of tubing. His rash is looking much better and one of his nurse practitioners said they might write an article on him and use his pictures because it is so rare and they've never really seen anything like it. Cohen and mommy got to have a little more snuggle kangaroo care time today which we both enjoyed. Cohen also finally got his fingers into his mouth! He is always trying to get them in there and this morning when we came in he was sucking on his fingers...what a big boy. I did take a picture but I don't have my camera cord here at the hospital. This is going to be one well photographed little boy!
Danny is here for one more night so he is taking me on a little date tonight. It will be nice to have some time together away from the hospital. We were coming into the hospital one day and he mentioned how normal it had become for us. I generally come in around 9-10 in the morning and stay until around 2:00. Sometimes I go home for a little break otherwise I stay until dinnertime and then go home. Then I make another trip back in the evening to say goodnight to the little fellow and read him his bedtime stories. He only has two books so far so we might get him another to add to his collection for his one month birthday on Sunday!
We are slowly starting to do a few more "normal" things like visiting with a few friends and Danny is the best man in a wedding next weekend so I may try and make it to that. So far I have been secretly thankful to kind of hide in Seattle and not have to see too many people quite yet. I have to admit it's a little bit awkward to see people for the first time mostly because I think people are a little bit afraid or aren't really sure what to expect out of us. It's usually kind of a cautious approach that we get. They probably aren't sure if I am going to be a crying mess or if we will still be the same people they knew before. Some days I am a crying mess, but some days are better than others, so I guess it's fair to wonder what you are going to get. Things that are not helpful are saying things like "At least you got one good baby" or "You can always have more kids". We are very thankful for Cohen, and yes we can have more kids, but that doesn't make losing Carter any easier. I know that people say these things with good intentions, but they aren't helpful. Things that are helpful are hugs, telling us you are thinking of us or praying for us, or asking questions about Carter and Cohen. I will talk about either of them any chance I get :) You don't have to have the "right" things to say, we just appreciate that you care. So many of you have called, sent cards, texts, emails, and facebook messages and I know we haven't been able to respond to everybody individually but please know that we did receive them and we do appreciate them very much!
Danny is here for one more night so he is taking me on a little date tonight. It will be nice to have some time together away from the hospital. We were coming into the hospital one day and he mentioned how normal it had become for us. I generally come in around 9-10 in the morning and stay until around 2:00. Sometimes I go home for a little break otherwise I stay until dinnertime and then go home. Then I make another trip back in the evening to say goodnight to the little fellow and read him his bedtime stories. He only has two books so far so we might get him another to add to his collection for his one month birthday on Sunday!
We are slowly starting to do a few more "normal" things like visiting with a few friends and Danny is the best man in a wedding next weekend so I may try and make it to that. So far I have been secretly thankful to kind of hide in Seattle and not have to see too many people quite yet. I have to admit it's a little bit awkward to see people for the first time mostly because I think people are a little bit afraid or aren't really sure what to expect out of us. It's usually kind of a cautious approach that we get. They probably aren't sure if I am going to be a crying mess or if we will still be the same people they knew before. Some days I am a crying mess, but some days are better than others, so I guess it's fair to wonder what you are going to get. Things that are not helpful are saying things like "At least you got one good baby" or "You can always have more kids". We are very thankful for Cohen, and yes we can have more kids, but that doesn't make losing Carter any easier. I know that people say these things with good intentions, but they aren't helpful. Things that are helpful are hugs, telling us you are thinking of us or praying for us, or asking questions about Carter and Cohen. I will talk about either of them any chance I get :) You don't have to have the "right" things to say, we just appreciate that you care. So many of you have called, sent cards, texts, emails, and facebook messages and I know we haven't been able to respond to everybody individually but please know that we did receive them and we do appreciate them very much!
Tuesday, June 28, 2011
Daddy's Turn!
Danny has Wednesdays off of work for the summer so he drives down after work on Tuesdays and then leaves for work from here on Thursday mornings. After I got to hold Cohen yesterday I asked the nurse today if Danny could hold him when he got here today. He has been stable enough that she thought that would be a good idea. I was so excited all day for Danny to finally get to hold him. Cohen enjoyed his snuggle time with his dad and was very well behaved again. He got to snooze with his daddy for about 2 hours. Not much excitement today other than that. His labs were checked this morning and his kidneys are doing fine but his liver function tests were up a little so they are going to continue to watch those. Cohen's nicu friend gave him some of his old preemie clothes that he has outgrown. Cohen doesn't get to wear clothes quite yet but we put one of the little hats on him and it fit perfectly! He looked like a little cupcake :)
There will probably be quite a few posts with my rambling, but it helps me process everything that is going on. I think that by being a mom I am learning more about the heart of God. Last night in Psalms I was reading about how the Lord takes delight in us as his children. He wants to bless us and he wants good things for us. This is something I have struggled with but when I look at Cohen, it starts to make more sense to me. I think everything he does is so cute, from his wiggling fingers and toes to his grumpy faces that he makes. I truly do delight in him, even in the smallest things that he does. I could sit and look at Cohen all day (and I often do!). When Cohen has to get his blood drawn, or a new IV started, or his little rash poked at, it hurts me too. I would do anything to take his pain away. The Lord is always thinking of us, always finding ways to bless us, waiting for us to look to him. He doesn't want bad things to happen to us. They do happen, that's a part of life with sin and he does allow us to go through them, but he hurts with us. He feels our pain and he walks with us, offering to carry our load for us. I know he has been carrying our burdens for us through this. I don't know how anyone who didn't have someone greater and more powerful than themselves to believe in would be able to make it through this.
On another note, I am so thankful for the nurses in the nicu. Cohen is getting to the point where he has "regular" nurses who know him and everything he has been through. They take such good care of him and it makes leaving him at night so much easier. The nurses have also been a huge support to me as I am there all day. They make sure to check and see how I am doing, whether I have had lunch, and if I am taking little breaks out for myself or with Danny. They have given me shoulders to cry and ears to listen. It takes a really special kind of person to take care of these teeny, tiny babies and their parents as well. We are so grateful to them!
There will probably be quite a few posts with my rambling, but it helps me process everything that is going on. I think that by being a mom I am learning more about the heart of God. Last night in Psalms I was reading about how the Lord takes delight in us as his children. He wants to bless us and he wants good things for us. This is something I have struggled with but when I look at Cohen, it starts to make more sense to me. I think everything he does is so cute, from his wiggling fingers and toes to his grumpy faces that he makes. I truly do delight in him, even in the smallest things that he does. I could sit and look at Cohen all day (and I often do!). When Cohen has to get his blood drawn, or a new IV started, or his little rash poked at, it hurts me too. I would do anything to take his pain away. The Lord is always thinking of us, always finding ways to bless us, waiting for us to look to him. He doesn't want bad things to happen to us. They do happen, that's a part of life with sin and he does allow us to go through them, but he hurts with us. He feels our pain and he walks with us, offering to carry our load for us. I know he has been carrying our burdens for us through this. I don't know how anyone who didn't have someone greater and more powerful than themselves to believe in would be able to make it through this.
On another note, I am so thankful for the nurses in the nicu. Cohen is getting to the point where he has "regular" nurses who know him and everything he has been through. They take such good care of him and it makes leaving him at night so much easier. The nurses have also been a huge support to me as I am there all day. They make sure to check and see how I am doing, whether I have had lunch, and if I am taking little breaks out for myself or with Danny. They have given me shoulders to cry and ears to listen. It takes a really special kind of person to take care of these teeny, tiny babies and their parents as well. We are so grateful to them!
Monday, June 27, 2011
Kangaroo Care
We are doing a little flashback today, this is the first time I got to do kangaroo care with Cohen! I had held him one other time, but he was all wrapped up and we didn't really get to snuggle. This was one of the best days of my life!
Today I was left by myself for about 12 hours, it was a big step. I did manage to walk to the market and find myself a sandwich and get myself to the hospital....it only took me an hour because I missed the bus twice. I don't have a car here because my license expired while I was in the hospital and I haven't quite gotten a chance to get it renewed. But, eventually I got myself there. I guess I'm not very good at being a big city girl, even though I lived here not too long ago.
When I finally got to the hospital the nurse asked if I wanted to do my first kangaroo care. Of course I said YES! I've held Cohen before but he was all wrapped up in a blanket and it was only for about 20 minutes. When they do kangaroo care they like to have you all settled because they like to leave the baby there for up to 3 hours. So I had my snack, made a bathroom trip, did my pumping and settled myself in the recliner chair. They put him on my chest so we were skin to skin and it was such a great feeling. I could feel his little feet and hands wiggling and feel his breathing. He did great the whole 3 hours, he only dropped his heart rate and oxygen once or twice when people came in to look at his rash (which is looking much better). I know that he is tiny, but when I was holding him I realized how tiny he really is. It didn't really even feel like I was holding anything! The time flew by and I really didn't want to give him back, but hopefully we will get to do that a little more often. I would love for Danny to be able to hold him because I think they would both really enjoy that.
The rest of the day was pretty quiet again. Cohen is hanging out on his ventilator settings. His blood sugars have been stable and they are going to take out his picc line tonight. They also want to increase his feedings so that he gains a little weight. Right now he weighs 1 lb 10 oz so its time to fatten him up. We are so thankful for Cohen and that he seems to be doing well. And this mom is pretty happy that she got to hold her baby boy... I think God knew that I needed a little snuggle time.
Today I was left by myself for about 12 hours, it was a big step. I did manage to walk to the market and find myself a sandwich and get myself to the hospital....it only took me an hour because I missed the bus twice. I don't have a car here because my license expired while I was in the hospital and I haven't quite gotten a chance to get it renewed. But, eventually I got myself there. I guess I'm not very good at being a big city girl, even though I lived here not too long ago.
When I finally got to the hospital the nurse asked if I wanted to do my first kangaroo care. Of course I said YES! I've held Cohen before but he was all wrapped up in a blanket and it was only for about 20 minutes. When they do kangaroo care they like to have you all settled because they like to leave the baby there for up to 3 hours. So I had my snack, made a bathroom trip, did my pumping and settled myself in the recliner chair. They put him on my chest so we were skin to skin and it was such a great feeling. I could feel his little feet and hands wiggling and feel his breathing. He did great the whole 3 hours, he only dropped his heart rate and oxygen once or twice when people came in to look at his rash (which is looking much better). I know that he is tiny, but when I was holding him I realized how tiny he really is. It didn't really even feel like I was holding anything! The time flew by and I really didn't want to give him back, but hopefully we will get to do that a little more often. I would love for Danny to be able to hold him because I think they would both really enjoy that.
The rest of the day was pretty quiet again. Cohen is hanging out on his ventilator settings. His blood sugars have been stable and they are going to take out his picc line tonight. They also want to increase his feedings so that he gains a little weight. Right now he weighs 1 lb 10 oz so its time to fatten him up. We are so thankful for Cohen and that he seems to be doing well. And this mom is pretty happy that she got to hold her baby boy... I think God knew that I needed a little snuggle time.
Sunday, June 26, 2011
3 Weeks Old & Some Thoughts
Cohen is 3 weeks old today! I say this every week, but time goes by so fast...I will probably be saying that for the rest of his life. After chasing him around with his insulin for a few days trying to control his blood sugar which was going really high and then dropping down low, the doctor decided to just turn off his insulin completely and see what happened. Instead of poking his little foot hourly to check his blood sugar they are now only checking every 6-8 hours. He has been off insulin since yesterday and his blood sugars have been stable. Hopefully this will give his body a chance to regulate itself out and control his blood sugars on his own and give his foot a chance to heal. He is at really high risk for infection and any time you break the skin you are increasing that chance, and his body sure doesn't need anything else to work on! Pray that his blood sugars continue to be stable and that he doesn't get any infections. Cohen is lower on his oxygen but has gone up on the volume being put into his lungs to help them expand a little more. He also got his breathing tube readjusted this morning and has had a good blood gas since then. His doctor doesn't consider increasing his ventilator settings a step back necessarily, just part of the road.
Dear Cohen,
We can't believe you are 3 weeks old today! You and your brother were the best gifts your mom and dad could have asked for. It's amazing how much you have changed in the last few weeks and we are so excited to watch you continue to grow. You are already developing your own personality. You always keep the doctors and nurses on their toes by doing things your own way instead of the "normal" way. We think that maybe you like all the attention you get because you love to set off your alarms. The more that go off at the same time, the better. We think that you have your mommy's nose and we know you have your daddy's long fingers and toes. We also know you have your dad's tummy because you love eating and you have never had any problems in that area! We know that God must have a pretty special plan for your life and we are excited to see what that is. You are the strongest little boy and we are so proud of you. We know you will continue to keep fighting. You are a perfect little boy and we are so thankful for you. We love you very, very much.
Love, Mom & Dad
I started writing this post this morning and had to stop because I was crying so much. I was thinking about how unfair it was that Carter will never have his 3 week birthday with his brother. Honestly, I was sad and angry. I was having a pretty bad morning and I just couldn't stop crying. I called a close family friend and had a pretty long talk with her. One of the things that our pastor said at Carter's memorial was that this wasn't a mistake. I have been wrestling with this thought since then. Our friend asked me if I was angry at God and I admitted that I was. I was mad that I felt like he had taken Carter away from us. She reminded me that God loves us deeply and he doesn't want bad things for us. He isn't malicious and mean. She told me that God had saved Carter, he will never have to know pain, fear, or sin. He is in heaven in the arms of Jesus, perfectly healed. If we asked him if he wanted to come back and live on earth would he say yes? He is in the best place he could ever be and I don't think he would ever choose earth over heaven with the Lord. The Bible says that God never promised that we wouldn't have pain and go through trials, they are part of living on earth with sin. But he does promise that he will never leave us. Does life always make sense? Do I understand God's plan? Not yet, but someday I will. There is some purpose to this. And someday I will get to be with my baby again in heaven. Until then, I find comfort in knowing he is with Jesus, who I'm sure is letting his Great Gramma rock him once in awhile!
This same family friend gave me a book called "Jesus Calling" awhile ago when I first started having problems in my pregnancy. God knows what I will be facing for the day and they always seem to speak right to my heart. This is the one from today:
"Stay calmly conscious of Me today, no matter what. Remember that I go before you as well as with you into the day. Nothing takes me by surprise. I will not allow circumstances to overwhelm you, so long as you look to Me. I will help you cope with whatever the moment presents. Collaborating with me brings blessings that far outweigh all your troubles. Awareness of My presence contains Joy that can endure all eventualities"
Please pray that I will constantly give my heart to the Lord as I continue to process all of this. That I will be thankful even in the midst of trials and sorrow. That I will look to the Lord for everything I need and not get caught up in myself. Please also pray for our physical health. Obviously, we have been under a fair amount of stress and both Danny and I have woken up over the weekend feeling like we may be getting colds. I tried to stay away from the nicu today because I definitely don't want to give Cohen anything. It's really hard not to see my little guy when I am used to being there all day. So please pray that this will not turn into a cold and that I can fight off whatever it is. And here's a picture for you if you made it all the way to the end of this.
Dear Cohen,
We can't believe you are 3 weeks old today! You and your brother were the best gifts your mom and dad could have asked for. It's amazing how much you have changed in the last few weeks and we are so excited to watch you continue to grow. You are already developing your own personality. You always keep the doctors and nurses on their toes by doing things your own way instead of the "normal" way. We think that maybe you like all the attention you get because you love to set off your alarms. The more that go off at the same time, the better. We think that you have your mommy's nose and we know you have your daddy's long fingers and toes. We also know you have your dad's tummy because you love eating and you have never had any problems in that area! We know that God must have a pretty special plan for your life and we are excited to see what that is. You are the strongest little boy and we are so proud of you. We know you will continue to keep fighting. You are a perfect little boy and we are so thankful for you. We love you very, very much.
Love, Mom & Dad
I started writing this post this morning and had to stop because I was crying so much. I was thinking about how unfair it was that Carter will never have his 3 week birthday with his brother. Honestly, I was sad and angry. I was having a pretty bad morning and I just couldn't stop crying. I called a close family friend and had a pretty long talk with her. One of the things that our pastor said at Carter's memorial was that this wasn't a mistake. I have been wrestling with this thought since then. Our friend asked me if I was angry at God and I admitted that I was. I was mad that I felt like he had taken Carter away from us. She reminded me that God loves us deeply and he doesn't want bad things for us. He isn't malicious and mean. She told me that God had saved Carter, he will never have to know pain, fear, or sin. He is in heaven in the arms of Jesus, perfectly healed. If we asked him if he wanted to come back and live on earth would he say yes? He is in the best place he could ever be and I don't think he would ever choose earth over heaven with the Lord. The Bible says that God never promised that we wouldn't have pain and go through trials, they are part of living on earth with sin. But he does promise that he will never leave us. Does life always make sense? Do I understand God's plan? Not yet, but someday I will. There is some purpose to this. And someday I will get to be with my baby again in heaven. Until then, I find comfort in knowing he is with Jesus, who I'm sure is letting his Great Gramma rock him once in awhile!
This same family friend gave me a book called "Jesus Calling" awhile ago when I first started having problems in my pregnancy. God knows what I will be facing for the day and they always seem to speak right to my heart. This is the one from today:
"Stay calmly conscious of Me today, no matter what. Remember that I go before you as well as with you into the day. Nothing takes me by surprise. I will not allow circumstances to overwhelm you, so long as you look to Me. I will help you cope with whatever the moment presents. Collaborating with me brings blessings that far outweigh all your troubles. Awareness of My presence contains Joy that can endure all eventualities"
Please pray that I will constantly give my heart to the Lord as I continue to process all of this. That I will be thankful even in the midst of trials and sorrow. That I will look to the Lord for everything I need and not get caught up in myself. Please also pray for our physical health. Obviously, we have been under a fair amount of stress and both Danny and I have woken up over the weekend feeling like we may be getting colds. I tried to stay away from the nicu today because I definitely don't want to give Cohen anything. It's really hard not to see my little guy when I am used to being there all day. So please pray that this will not turn into a cold and that I can fight off whatever it is. And here's a picture for you if you made it all the way to the end of this.
Friday, June 24, 2011
A Fairly Quiet Day
Cohen had another pretty quiet day. I got to the hospital this morning just in times for rounds. All of the people who take care of Cohen meet every morning and talk about him and everything going on.He has about 6 doctors, respiratory, pharmacist, nutritionist, and nurse. I have only been to rounds twice and I just cried through them, but today I actually went and didn't cry! This is a pretty big accomplishment for me.
Cohen's kidney ultrasound that he had yesterday to check to see if the fungus had spread came back normal as well as his echo that he had done today! What an answer to prayer! He has one spot on his chest xray in his right lung that they aren't sure if it may have gotten to his lungs or if it is something else. Cohen still has a moderate PDA but the doctors aren't planning on doing anything unless it starts to prevent his progress in going down on his settings on the ventilator. At this point they are happy that he is making enough progress that they don't think anything needs to be done immediately. Last night when I left he was pretty low on his oxygen, almost to room air! This morning I came in and he had to be increased in his oxygen quite a bit, this kind of seems to be how it goes...up a little, down a little.
One prayer request is Cohen's blood sugars. They seem to be all over the place and because of this they are having to change his insulin all the time and poke his poor little feet to check his blood sugars hourly. He can't quite seem to get regulated in his blood sugars and nobody is sure why. He will have good sugars and get his insulin turned off and then he will go really high and have to go back on again. So please pray that they can figure out why he is having so many variations and that they will level out. He is still so little and all the labs and pokes he gets make his blood levels get low and they he needs blood transfusions, he had to get another one today.
We are already starting to see little bits of Cohen's personality. Lots of preemies don't tolerate getting turned and messed with very well, but Cohen is pretty easy going and laid back when it comes to this. I think he gets that from his dad. He also seems to be fairly stubborn and likes to do things his own way, not the way of normal preemies. I think maybe he gets that from me. We like to tease him that he just likes all the attention from having a weird rash and not having the "normal" preemie problems. A common problem with little babies is feeding problems. Cohen started getting breast milk (through a feeding tube) last week and hasn't looked back. He is up to 3 mL per hour, he must have his dad's stomach too!
Ok, I guess his day was a little busier than I thought, but maybe I'm just getting used to it. I'm not sure that any of this will ever feel normal, but maybe someday it will get a little easier. Thanks for all your continued prayers! We really do appreciate them.
Cohen's kidney ultrasound that he had yesterday to check to see if the fungus had spread came back normal as well as his echo that he had done today! What an answer to prayer! He has one spot on his chest xray in his right lung that they aren't sure if it may have gotten to his lungs or if it is something else. Cohen still has a moderate PDA but the doctors aren't planning on doing anything unless it starts to prevent his progress in going down on his settings on the ventilator. At this point they are happy that he is making enough progress that they don't think anything needs to be done immediately. Last night when I left he was pretty low on his oxygen, almost to room air! This morning I came in and he had to be increased in his oxygen quite a bit, this kind of seems to be how it goes...up a little, down a little.
One prayer request is Cohen's blood sugars. They seem to be all over the place and because of this they are having to change his insulin all the time and poke his poor little feet to check his blood sugars hourly. He can't quite seem to get regulated in his blood sugars and nobody is sure why. He will have good sugars and get his insulin turned off and then he will go really high and have to go back on again. So please pray that they can figure out why he is having so many variations and that they will level out. He is still so little and all the labs and pokes he gets make his blood levels get low and they he needs blood transfusions, he had to get another one today.
We are already starting to see little bits of Cohen's personality. Lots of preemies don't tolerate getting turned and messed with very well, but Cohen is pretty easy going and laid back when it comes to this. I think he gets that from his dad. He also seems to be fairly stubborn and likes to do things his own way, not the way of normal preemies. I think maybe he gets that from me. We like to tease him that he just likes all the attention from having a weird rash and not having the "normal" preemie problems. A common problem with little babies is feeding problems. Cohen started getting breast milk (through a feeding tube) last week and hasn't looked back. He is up to 3 mL per hour, he must have his dad's stomach too!
Ok, I guess his day was a little busier than I thought, but maybe I'm just getting used to it. I'm not sure that any of this will ever feel normal, but maybe someday it will get a little easier. Thanks for all your continued prayers! We really do appreciate them.
Thursday, June 23, 2011
Mystery Solved (hopefully)
Since I last wrote a little update, the drs have decided that Cohen has a fungus and not a virus. Yuck, poor little guy. Again, it is something that is just in the air/environment/on skin and they will probably never know where he got it. So he is off his antivirals and has been on antifungals for the last few days. They sent his pictures over to Children's and they thought it looked like a fungus they had seen before in small babies. Because of his poor kidney function, they can't give the usual medicine but they are giving him another one that they said is generally just as effective. He is going to have a kidney ultrasound today to make sure that there is no fungus in his kidneys. We are still hoping that it hasn't spread anywhere other than his skin. The drs think that if it had spread anywhere else he would be a lot sicker but can't say 100%. We are still waiting for the results from his spinal fluid, blood, and lungs to see if there is growth anywhere else.
Cohen has had a few pretty quiet days. He has had to go up a little on his ventilator settings, but today came back down a little. He was supposed to have another echo of his heart today to check on his pda but there are too many scheduled and since he is pretty stable he will have it tomorrow instead.
He was very well behaved while we were gone for the memorial and even sent us a few videos of him waving so we would know he was okay (which I watched over and over...probably about 70 times!)I took a few videos today because he has been really active today, waving his arms and legs, opening his eyes and pulling on his tubes. I would just turn off my camera and then he would do something else cute so I would take another picture or video. Poor guy probably wanted his mom to go away, but he wouldn't quit showing off! I can't get them to load with the slow internet here, so I will have to put them up later. Here are some pictures from today. I would have been 28 weeks pregnant today. It's amazing how well this little guy is doing when you consider that he should have been inside about another 12 weeks still!
Cohen has had a few pretty quiet days. He has had to go up a little on his ventilator settings, but today came back down a little. He was supposed to have another echo of his heart today to check on his pda but there are too many scheduled and since he is pretty stable he will have it tomorrow instead.
He was very well behaved while we were gone for the memorial and even sent us a few videos of him waving so we would know he was okay (which I watched over and over...probably about 70 times!)I took a few videos today because he has been really active today, waving his arms and legs, opening his eyes and pulling on his tubes. I would just turn off my camera and then he would do something else cute so I would take another picture or video. Poor guy probably wanted his mom to go away, but he wouldn't quit showing off! I can't get them to load with the slow internet here, so I will have to put them up later. Here are some pictures from today. I would have been 28 weeks pregnant today. It's amazing how well this little guy is doing when you consider that he should have been inside about another 12 weeks still!
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